PDF | Background: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders | Find, read and cite all the research you need on ResearchGate
Conceptual model of relationships between sociodemographics
Needs management in families affected by childhood-onset dystrophinopathies - Kristin M Conway, Katy Eichinger, Christina Trout, Paul A Romitti, Katherine D Mathews, Shree K Pandya, , Muscular Dystrophy Surveillance, Tracking and Research
PDF) Perceived quality of life among caregivers of children with a childhood -onset dystrophinopathy: A double ABCX model of caregiver stressors and perceived resources
Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia, BMC Geriatrics
Instrumentos para avaliar a sobrecarga e a qualidade de vida de cuidadores
Stressor pileup, family and couple relational well‐being, and parent stress during the COVID‐19 pandemic - Brik - 2024 - Family Relations - Wiley Online Library
Frontiers Predictors of overload in parents of children with neuromuscular diseases
PDF) Comparing the Effectiveness of Parenting Education Based on the Double ABCX Model and Compassion-Based Parenting on the Mother-Child Relationship and Behavioral Problems of Children with Intellectual and Developmental Disabilities
Understanding adaptability in the family environment in facing COVID-19: A review - ScienceDirect
PDF) Perceived quality of life among caregivers of children with a
Perceived mental health in parents of children with rare congenital surgical diseases: a double ABCX model considering gender, Orphanet Journal of Rare Diseases
IJERPH, Free Full-Text
Self- and Caregiver-Reported Participation, Quality of Life, and Related Mood and Behavior Challenges in People Living With Dystrophinopathies - ScienceDirect